Eden had her annual bronchoscopy with Dr. Prager so we packed up the crew and headed to Denver for a quick weekend get away. It's such a blessing that we can stay with Greg and Steph and turn these sometimes negative medical trips into great family time.
The kids do awesome on the road. This time we got 3 out of 4 asleep for a period of time on the drive out. Success!
Bright and early the next morning, Eden and I headed to the hospital for her bronch. She wasn't nervous at all and handles all of this like a champ. I always like that we get a couple hours together before she goes in for her procedure. Even though she is fasting, and getting ready to go through something rough, you'd never know it. She has always had such a good attitude about all of this.
Everything with the procedure went smoothly. Waking up and having an IV is always the worst part for her. Fortunately, she bounced back from anesthesia pretty quickly and we were on our way. Before we left though she had one request. She remembered seeing a big doll house in the hospital years ago and we wanted to search the place to find it again. It's a big hospital, but we found it! It made me reminisce on all the time we have spent in this place, especially during the weeks of the intensive feeding therapy we did. She had to be in a feeding session two or three times a day, and most days it wasn't worth leaving the hospital so for weeks we just killed time by finding things in the hospital (like this doll house). I remember little baby Bentley napped right there on the floor next to that doll house one day. It was fun to find it again, and she even confirmed her memories of a lot of the pieces and creatures inside the house. She loved it and I was glad to see all her memories of this side of things are good ones.
As an update on her airway, she has a trouble spot in her upper airway that Dr. Prager feels is something that needs to be watched, but wasn't yet worth working on. As of right now he felt she was completely stable so the risks of manipulating the airway weren't worth it yet. We will do a sleep study in the fall and make sure things aren't getting worse, and we will continue to monitor.
After leaving the hospital, we needed to get this fasting girl some food! She chose the iHop down the road because she felt that chocolate and banana crepes would totally hit the spot.
Once we broke free of the hospital, the fun began. We spent the rest of the weekend hanging out and enjoying time with family.
The kids played for hours in the backyard. They made a cafe and every rock had a different kind of entree that could be ordered. They used every kind of plant they could find, and each "dish" was a little different. It was so cute to see their creativity.
We are so grateful to stay with them while we have these medical trips. It's the best that we can get in so much family time, and accomplish our out of state medical appointments at the same time. We love having our families together. Thanks Greg and Steph!
Sleeping in the car - it's like a drug. I can't help it. It's just too good.
1 comment:
Eden is truly a brave girl. She has gone through, and will continue to go through so much. I admire her bravery.
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