May 16th Eden was scheduled for her next bronchoscopy at Denver Children's Hospital. Brad had blocked a few days off at work so he could drive out with us, and keep the two little ones while I spent Friday at the hospital with Eden. Unfortunately, a few days before leaving to Denver, Uncle Jeff took a pretty scary turn for the worst and we all felt it was best for Brad to head out to TN to be with his family, and help support them through Jeff's sickness.
I was pretty nervous to be taking the drive and trip to Denver solo, but it's what needed to happen, so I strapped them all in and out we went!
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| At the halfway point, when we stopped for gas, I turned Olivia's carseat around to face forward to try to prolong her happiness and give her something else to look at. She was pretty excited about that at first. I love her funny smile. |
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| And then... a miracle happened. They ALL fell asleep. It was a blessing from on high for sure. |
Stephanie graciously offered to watch Bentley and Olivia for me, so bright and early Friday morning, Eden and I headed out to the hospital.
It always takes a couple hours in pre-op while they get ready for the procedure so we were finding things to do to entertain ourselves. It becomes a really special time for Eden and I together as we wait for these procedures. She's a pretty awesome kid.
This time she was a little antsy to go back to the operating room. She was excited though about picking out a smelly chapstick that they rub all over the inside of the mask. She thinks it smells so good and that it's funny that she gets to do that.
Prior to starting the bronch, I met with Dr. Prager and told him that her breathing was louder and sounding more strained since the last time we were there. I was a little curious and anxious to find out what that meant and how things looked down there.
So there are three areas of her airway that they are looking at each time she goes under. The lower airway, almost where it branches off into her lungs, still has severe tracheal malasia (softening and collapsing of the airway). This news isn't new, but also doesn't look (yet) like it's improving at all. So this is a big check against her and certainly contributes to her strained and loud breathing.
The second part of the airway they look at is below the vocal cords which is the area they reconstructed. This part looked good. The rib grafts are healing nicely. The airway is nice and round and looking good. Sweet! This was fabulous news.
Then the last part is the upper airway, above the vocal cords, which is the picture below. Because of the force of breathing through a small airway that has tracheal malasia, this upper airway is slowly kind of turning in and down into the airway. This is a problem they have seen before and is a form of "maintenance" they expected to happen at some point after a reconstructive surgery like she had. So this is a second strike against her which is also contributing to her increase in strained breathing.
So the plan is to do another minor procedure next time we go to open this part up a little bit. On the sides where he drew the dotted lines, he plans to snip that skin to release the tension. Also, he will laser out a bunch of the stuff all along the bottom that is folding in. This should help relieve the occlusion a little and open that upper part up again. I'm still waiting on contact back from the hospital to find out the recovery time there and when that will take place. He didn't seem too concerned that it needed to happen really soon, but when she is active she sounds like breathing is so much work so I want to try to get back in as soon as possible to help relieve some of that strain for her.
Once we were finally checked out of the post op recovery area, the first order of business was to get this fasting girl some food. She was very excited to pick out anything she felt looked good.
Aside from the day at the hospital, we were able to spend lots of quality time with Stephanie and the kids. We stayed a couple extra days so it felt like a fun trip, not just a medical one. :)
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| The kids all love Mason, he is so sweet with them. (the stranger girl in the middle is one of Stephanie's daycare kids ha ha) |
On one of the days we went to the Krispie Kreme donut factory, and then over to Chuck-E-Cheese's. The kids had a blast.
The drive home was a little rougher than the way out, but the kids did really good overall. We did stop at a park in Raton and played for a while and that really seemed to help Olivia get some wiggles out. Overall it was a great trip.
While we were there, Brad kept us posted on his trip out in Chattanooga, TN. He got to see some pretty cool places and spend some quality time with his family so I'm grateful he was able to go and that Jeff is recovering.